Cindy Lou

Journal to share my thoughts and daily events with friends and family
in my journey through Acute Myelogenous Leukemia (AML).

Wednesday, August 16, 2006

Very Good Day

Today was a very good day! I had very little nausea and no vomiting. The Dr nows says that he thinks the esophagus has a little GVH, but the biopsies are not back yet that they took during the EGD. So we will just have to wait and see. He says it is really better to have a little GVH which Steve also said in one of his blogs. It shows the graft is doing what it is supposed to do. The Dr is very happy with my counts. He says I am definitely engrafted with libby's bone marrow cells. My hemoglobin continues to climb and I have needed no red blood cell tranfusions. My platelets are still low, but he says that the platelts are the last cells to catch on and grow. You can tell they are low, my body is covered in bruises. I fell on one of those nights I was having hallucinations and my butt is one big bruise! Steve, at least Mickey Mouse didn't lock me out of my bathroom, but I was seeeing all kinds of strange things. I swore there was a weird cat in my room and my nurse kept reassuring me they would not have cats up there. My white count is up to normal limits and I am not what they call neutropenic any more. that means I am not as susceptible to infection as I was. So, now they are preparing me for discharge. I started taking some pills today. It went well. More tomorrow. The Dr said the steroids are making my blood sugar go up and I may need to be on insulin until I am weaned of the steroids. It depends on what reading it is tomorrow. It was 170 fasting today. So, Erika, I may be joining you! Although, you will probably be done with that soon. As soon as Liv gets here, which may be within the week! Exciting!!!!!!!!! Kyle trimmed KD and Erika's trees today and then had lunch that Erika made for him. then he came up to see me. We had dinner together. And we are watching the Tigers game. So it has been a very good day Keeps me saying YES I CAN!

16 Comments:

  • At 8:51 PM, Blogger Kyle Roth said…

    Hi Mom, you sound great! Erika is still cleaning as she moved her cleaning day to weds. due to the ultrasound and amnio tomorrow. She is getting her final nesting done. If she does not go into labor before Monday, we should find out then, at her appointment, when they will induce her.

    This is how it works for us, you get released from the hospital and Erika goes in. You start insulin, Erika stops. It is a cycle keeping both Cleveland Clinic and University Hospitals busy.

     
  • At 9:03 PM, Anonymous Anonymous said…

    HI ABBEY & KYLE,
    SOUND LIKE A VERY GOOD DAY, THANK GOD , YOU HAVE BEEN DUE FOR A GOOD ONE, WE PRAY THEY CONTINUE TO BE GOOD DAYS FOR YOU. KEEP RESTING AND GETTING YOUR STRENGHTH BACK. WE LOVE YOU, JULIE& ED

     
  • At 9:45 PM, Anonymous Anonymous said…

    Hi Cindy And Kyle,
    I hope you are able to get discharged soon.That way you'll get to spend some time outside to enjoy the sunshine .There's so much you can do and it'll be a blessing to have your life back to normal.You have climbed that mountain and placed your flag firmly in the ground for Victory . Yes you have Won The battle.
    Thinking and praying for you daily.
    Linda P.

     
  • At 10:42 PM, Anonymous Anonymous said…

    HI CINDY
    SO GLAD THAT YOU ARE FINALLY HAVING SOME GOOD DAYS, I AM SURE THAT THEY THERE WILL BE MANY FROM HERE ON. HOMECOMING WILL COMING SOON.
    LUV YA---MOM ROTH AND RALPH

     
  • At 6:06 AM, Blogger Saroth said…

    Good morning, Cindy,

    You sound wonderful and that is worth repeating. You are the strongest person I know and we are blessed to have you in our lives. You have touched so many with your courageous fight. Keep believing, because you are getting closer and closer to home. Stay strong and we love you!
    Sending love and prayers,
    Jude, Shelly, Bryce and Shai

     
  • At 8:24 AM, Anonymous Anonymous said…

    Good Morning Cindy,Sorry I missed your call Iwas at work.Don`t like 3-11,but will be better later.I`m glad you are doing better,will call you on saturday.Marcie and I will have fun shopping.Keep up the good work.Love,Beth

     
  • At 8:45 AM, Anonymous Anonymous said…

    Cindy & Kyle,

    Daily prayers and thoughts are still a comin!!! Sounds like better news according to your blog.

    YES YOU CAN AND YES YOU WILL WITHOUT A DOUBT.

    Love & prayers,
    Ed & Cindy

     
  • At 9:42 AM, Anonymous Anonymous said…

    Morning Bella!
    You sound Terrific!!!!! Thank you for telling us about the medical "stuff". I'm not sure I understand it all, but I did I understand some of it, especially that you're coming ---------->HOME!
    What a journey this has truly been, one that none of us will ever forget. So you take some insulin for awhile. Whatever meds they give you, short or long term, it doesn't matter. Eventually we all end up on them for one thing or the other, anyway. The BMT has taken and that is all that counts! I don't think I could have withstood all that has been thrown at you, Cindy. You have taught me so much and I thank you for that. There are no adjectives that really describe what you have gone through and what kind of woman/mother/wife/sister/ and Nana you are to all that love you. A miracle and an angel on earth, all tied up with a huge pink ribbon with a boxing glove on top. You have made it and I thank God for bringing you through it all. My heart has ached for Kyle and your children throughout all the ups and downs and twists in the road.
    I know what they have had to go through right along with you as I, too, journeyed with my mom. They were all on that coaster with you and hanging on tight. I am so thankful you have come into my life. Sleep well my friend and soon we'll be visiting you at Central Ave.! YES I CAN!

     
  • At 10:57 AM, Anonymous Anonymous said…

    Dear Cindy, I'm so sorry I haven't written in awhile, but we've been in California and I've just been swept up in eveyday life, but I've always had you in my thoughts and prayers eveyday Cindy. You are truly amazing with all your strength and determination and I know you will win this battle. I admire you so much. I'm glad you're feeling better and hope you'll be in the comfort of your own home soon with all your loved ones.
    Love, Marsha

     
  • At 6:44 PM, Blogger Kate said…

    Hey you,
    Sounds like things are going as good as they possible can. You are a winner!!!!! Thank the good Lord above!!!! You are a walking miracle Cindy. I love ya!!!
    Kate

     
  • At 10:27 AM, Blogger Kate said…

    Hey Cindy lou..It's me again. Just wanting to let you know I am thinking of you!! I love you so much and praying for God's healing hands on you!!!
    Love ya,
    Kate

     
  • At 12:47 PM, Anonymous Anonymous said…

    Hi Kyle and Bella,
    I see there hasn't been any post since Wednesday, so I'm thinking things may be a little stressful right now. Just wanted you both to know you are in my thoughts and prayers. Hang in there together and keep the bus on the road. (Jabez)

     
  • At 11:30 AM, Anonymous Anonymous said…

    HI CINDY AND KYLE, I WANTED YOU TO KNOW I AM SENDING YOU MY LOVE AND PRAYERS. I AM THINKING YOU HAVE HIT A BUMP IN THE ROAD BECAUSE THERE HAS BEEN NO POSTING ON THE BLOG SINCE WEDNESDAY. HANG TIGHT ONE STEP AT A TIME. CINDY, YOU CAN TO THIS, YES YOU CAN!!! LOVE YOU DIANA

     
  • At 11:41 AM, Anonymous Anonymous said…

    I am sending prayers. I am hoping your computer is broke and that ou aren't having a rough couple days. DAMN THOSE SPEED BUMPS!! They slow you down but they don't stop you from reaching the finish line. Chico and Char

     
  • At 7:19 PM, Anonymous Anonymous said…

    I've been missing you, Bella. Hope the puter is down and not you. YES I CAN!

     
  • At 10:37 PM, Blogger Jessie said…

    I am going to kind of post for my mom and tell all of you that yes she is doin ok! She is having some reactions to the medicine. The medicine that is helping her body adapt to the new bone marrow. My dad says that it is hard to understand her talking to him and she us getting mad and a bit deprest being that she is not going to be out tomorrow as anticipated. I want so bad to be there with her but my dad says he doesn't think the kids wouls want to see her like this. i agree because my kids have been crying for her daily.We all miss you mom but getting you better will bring you home. The last conversation I had with you, you told me how much you missed your grand babies. We all miss you and believe me we want to be there with you. I am hoping to come see you tomorrow I have to see if the girls will be taken care of first. I just want to come and give you a big hug. I LOVE YOU SO MUCH!!!!
    Love,
    Jess

     

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