Cindy Lou

Journal to share my thoughts and daily events with friends and family
in my journey through Acute Myelogenous Leukemia (AML).

Thursday, August 10, 2006

Back to the clinic

Cindy went for some tests today at the Taussig Center. We were there most of the day and late in the afternoon she started to run a fever(101) so they re-admitted her. She wasn't very happy, but this is what is best for her and I think she now realizes that. They did a blood culture and we will get the results tomorrow. It could be graft vs. host whhich is fairly common. And they may have to give her some steroids.

Kyle

posted by Cindy Lou @ 8:02 PM  

17 Comments:

  • At 8:48 PM, Anonymous Anonymous said…

    Hi Cindy and Kyle,
    Just Want you to know we're starting our Circle Of Prayers To help get you around this curve on your Rollercoaster Ride.Just keep saying Yes I Can.
    Thinking of you daily .
    Linda P.

     

  • At 10:10 PM, Anonymous Anonymous said…

    cindy: We are praying for you. chico and char

     

  • At 10:51 PM, Anonymous Anonymous said…

    HI CINDY
    JUST ANOTHER BUMP IN THE ROAD BUT HANG IN THERE. YOU HAVE BEEN OVER BIGGER BUMPS THAN THIS BEFORE AND ROAD THEM OUT TO BETTER THINGS. WE WILL KEEP THE PRAYERS COMING. TAKE CARE.

    LUV YA----MOM ROTH AND RALPH

     

  • At 3:50 AM, Anonymous Anonymous said…

    A little bit of GVHD is a very good thing. If the doctors can keep it under control and mostly just in the skin, it's what you want. It sucks but it's a good thing in the long run. It means your new cells are still out there fighting any leftover leukemia that the chemo didn't finish off. Just take it easy. The thing you're in is a marathon not a 5k. You're gonna have ups and downs. Just keep the course, stay focused and you'll be alright.

    It's the people that never experience GVHD that I worry about. Your gonna run into suprises like this in the next couple months. It's OK. It's part of the fight. Just take it in stide. You know the goal. You'll get there. It just might take a little more time than you like. You're new life-saving cells are more scared than you are. How would you like to wake up in a new house and not be able to get out? It's going to take some time for everyone to get along.

    Take care - Steve Wicker

     

  • At 6:35 AM, Anonymous Anonymous said…

    Cindy,
    Andy and I have you & Kyle in our thoughts everyday. You will over come this little bump in the road and will be back at Hope Lodge soon. Take care.
    Love
    Debbie

     

  • At 7:55 AM, Anonymous Anonymous said…

    Good morning cindy and kyle, I hope today is a better day. I can't imagine what you're going through with all this but you amaze me everyday with your strength and courage. Steve a special Thank You to you for your help to all of us to help us understand what's happening here. I wish there was more we could do to make you feel better but once again ONE DAY AT A TIME! We are thinking of you all the time and know there are better days coming. Love you
    Doug and Pat

     

  • At 8:20 AM, Anonymous Anonymous said…

    Cindy & Kyle,

    One step forward and two steps back. Ed often said that after his open heart. You will get there just may take a little longer.

    To Steve Wicker, I do not know you but what a courageous, inspiring man you are. Your advice to Cindy will surely help her get through this path that God has chosen for her to take. Thank you and God Bless You too.

    Cindy, I saw your Mom last night. Ed & I had fun with Marcie at the Elk's - got our once a week red meat fix. I gave Marcie $5.00 to buy me tickets hoping she would bring me some LUCK - DID NOT WORK!!

    Keeping you in our thoughts and prayers everyday.

    Love & prayers,
    Ed & Cindy

     

  • At 9:22 AM, Anonymous Anonymous said…

    Good Morning Cindy&Kyle,I sure hope you feel better today and have a good weekend.Have had you in my thoughts and prayers daily.Later going to go get Marcie take her to a early lunch before I go to work.I wish I could do more for you so you could feel better.I guess just keep my prayers for you.Love,Beth

     

  • At 10:17 AM, Anonymous Anonymous said…

    Hi Abby & Kyle,
    Prayin and believin you're feelin much better today. Sending light & love to you both. The Law of Attraction...We all must keep believing and visualizing your body is completely healthy. No negative thoughts or words.
    We are all being taught so many things because of this journey. Keep holding on to all of your positive beliefs. You are both so loved. Val

     

  • At 10:28 AM, Anonymous Anonymous said…

    Hi Cindy & Kyle,
    Like Steve said GVHD is a good thing. You want to have some. Kyle, I know how you feel too. It isn't easy to see your loved one going through all the stages. Many times I asked God why Steve and not me. But I know I could never had withstood all he went through. I think of you all the time and keep praying for you two. Just remember one day at a time.

    Take care, Ginny Wicker-Piddock

    P.S. If anyone out there wants to talk to me about BMT, please call me. I'm not a doctor but maybe I could help after my experience with my son, Steve

     

  • At 11:04 AM, Anonymous Anonymous said…

    ABBEY & KYLE ,
    I KNOW ITS NOT EASY BUT YOU HAVE MADE IT SEEM LIKE YOU CAN DO IT WITH OUT ANY DOUBT.THAT IS GREAT FAITH THAT WILL GET YOU THROUGH ALL OF THIS .THERE ARE SO MANY PEOPLE WE CAN BE THANKFUL FOR , KYLE AND CINDY YOU HAVE BEEN, AND ALWAYS WILL BE AN INSPIRATION TO ALL OF US, LIBBY FOR YOUR GIFT TO CINDY AND YOUR STRENGTH AND SUPPORT TO HER. AND STEVE WICKER FOR YOUR WORDS OF WISDOM, GOD HAS A PURPOSE FOR US ALL.GOD BLESS ALL OF YOU . WE LOVE YOU , JULIE & ED

     

  • At 1:00 PM, Anonymous Anonymous said…

    Hi Mrs. Roth, I was dated jessie when I worked at Cedar Point many years ago. I happened across jessie's bloger page and saw that you are a survivor against Leukemia. My father battled cancer 3 times within the past seven years and thank god he came out the winner through love, medicine, and prayers. I just wanted you to know that I am praying for you as well as my parents whom I told about your situation. You have a wonderful family and have a lot to be proud of . Take care and god bless.

    Chris Wareham, (Alex)

     

  • At 2:33 PM, Blogger Saroth said…

    Cindy,

    Sending you love, thoughts and prayers. Remember the Little Red Engine that Could story and "Keep thinking YES I CAN"
    Take Care.
    Jude, Shelly, Bryce and Shai

     

  • At 3:01 PM, Anonymous Anonymous said…

    Hi Bella!
    What an awesome gift you and Kyle have with Steve Wicker. I'm sure he will be there for both of you whenever you get upset or worried. He's three years down the road from this and look how he's reaching out to you. Draw on his strength and experience because the rest of us don't really know all that you are going through. Just as Steve is here for you now, one day, you be also be able to reassure another family that gets hit with this miserable disease. Take a big breath in Cindy, slow down and ride this through. Don't be in a hurry. The goal isn't a certain date to be out of there---the goal is to just get home. Slowly kiddo, just let your body do its thing. YES I CAN!

     

  • At 3:22 PM, Anonymous Anonymous said…

    As always, thinking and praying for you. It was really nice to read Steve's note. It helped explain to us "lay" people and to reassure us that things are still on track. Thanks Steve! Kyle, I know you have to be going crazy, but the two of you are on the home stretch. Hang in there. We love you both.
    Love,
    Mark and Jan

     

  • At 9:45 PM, Anonymous Anonymous said…

    Cindy:I hope today was much better for you than yesterday. This is part of the journey God has planned for you but I know that you have many many years of love and family and friends yet to come.
    I also dont know Steve but what a wonderful gift he has given you and Kyle in himself, someone who can tell you what is coming next and why. He is an inspiration along with you. God chooses special people for special journeys. love chico and char

     

  • At 12:00 AM, Blogger Jacki said…

    Thinking of you!

     

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