Cindy Lou

Journal to share my thoughts and daily events with friends and family
in my journey through Acute Myelogenous Leukemia (AML).

Friday, June 02, 2006

rollercoaster

I'm sure you been wondering what's going on. Well today was a wild rollercoaster ride. I woke up happy, knowing I was going home soon and I was clear. But the doctor yesterday kept stressing 'preliminary report", so I was anxious for them to come in with the final report. That didn't happen until this afternoon and it was not what I expected. The doctor said they found 3% blast cells in the bone marrow,consequently I am not in remission. So now the plan changes again. I am going to go home at the beginning of next week. I cannot go to my son's wedding, which breaks my heart. I am going to rest at home for a month. Then I will be getting a bone marrow transplant from my sister, Libby, and another month in the hospital. Then, hopefully I will be cured. I'm feeling a little low tonight, so keep the prayers coming.

posted by Cindy Lou @ 4:34 PM  

18 Comments:

  • At 5:21 PM, Anonymous Anonymous said…

    Hi Cindy: I am so sorry to hear your news. Each and every day, at least 5x/day (I log on each time I walk through the room), I read your blog and its comments. I have been brought to tears so many times by the wonderful thoughts and prayers sent your way. We all know you will beat this. You are amazing, as are your family and supporters. It is so obvious how much you are loved and how often everyone thinks of and prays for you.
    Take care,
    Jeanne

     

  • At 5:54 PM, Anonymous Anonymous said…

    Cindy
    Here I am writing and for once in my life I don't know what to say to put your mind at ease. But for one thing---you have just met up with another big bump in the road and I am sure that you are sick and tired of these bumps. You can go home now for awhile and get recharged and then get back in there and FIGHT FIGHT FIGHT this darn battle. The LORD is testing all of us and we have got to stay strong. We will all continue to see this through till that GREAT day when we hear the words REMISSION FOR CINDY.
    GOD SPEED.
    LUV YA---MOM ROTH AND RALPH

     

  • At 6:41 PM, Anonymous Anonymous said…

    Hi Cindy, the Good Lord is pushing things to the limit but I once heard you say that he doesn't give us anything we can't handle. You are living proof of that. Stay positive, it will be easier to at least be home and the transplant is the best solution. The prayers are coming from everywhere and everyone. Can't wait to have you home. Love you so much, Doug and Pat.

     

  • At 7:56 PM, Anonymous Anonymous said…

    Cindy, don't get down now....you will make it through this! You are such a fighter and I admire you so much!!! We are pulling the unit together to donate our ETO to you, so keep fighting and let others take care of you! You are in my prayers. Renee

     

  • At 8:38 PM, Anonymous Anonymous said…

    Hi Cindy Kyle and Family,
    Well let's buckle up for another Rollercoaster Ride .We'll need Lots and Lots of Prayers to Connect our Circle for the Power Of Prayer.Some laughter ,rest and relaxation should help ease our stress. We'll Thank God for the sunshine, flowers and air that we
    breath.We'll be Thankful for what we have and Wish Well for others .Cindy I know Things will work out.Libby is a match for the bone marrow transplant.That,s Great.We'll tell your son he can't get married Ha Ha.Just kidding.Well take care and remember the Cindy Lou Bloggers say Yes She Can.
    Thinking of you daily .
    Linda P.

     

  • At 9:03 PM, Anonymous Anonymous said…

    Hey Aunt Cindy keep the faith. You've been strong this far, keep it up. As always my and many more prayers are with you.

     

  • At 9:26 PM, Blogger erika said…

    Don't let this discourage you. You went from 28% down to 3% and that is amazing in itself. Use this month at home to rest and recoup so that next month you can get back in the ring. The transplant is your cure and it will be a long road, no doubt, but at the end of it is a long and happy life so just take it one day and one step at a time and remember how much you are loved by so many people. Doug's right - you always say that God only gives us what we can handle and as we know, he thinks you can handle A LOT, but he knows what he's doing, so keep the faith!! I love you and I'll see you soon.
    Love always,
    Erika

     

  • At 9:53 PM, Anonymous Anonymous said…

    Hi Cindy,
    Thing`s will work out you have come threw this month, you can do it everyone is standing behind you. If we all could take a little from your hurting we would. We just got home from T.J.`s party Marcie is spending the night.We all had a good time Reghan was pooped out.Well stay strong.Love ya,Beth

     

  • At 10:20 PM, Anonymous Anonymous said…

    Hi Mom,

    We are very sorry that the news wasnt what any of us expected. You just need to keep on fighting. Of course everyone would love to have you at the wedding. However Lauren and I think it is more important for you to be there for the many anniversaries to come.
    Enjoy your time at home and get the quality rest in your own bed. I bet it is going to be quiet a relief to not wake up at 3 am with nurses taking your vitals!
    We love you very much and cant wait to visit you at your house. You WILL beat this!
    You have your dream and you are working hard to reach it. You cannot lose if you keep that fight. We are so proud of what you have accomplished. You have taught all of us what it means to stay strong.
    We love you mom and we will see you soon.

    Zac, Lauren, Bailey and Riley

     

  • At 11:19 PM, Blogger Jessie said…

    I just thought I would pop in and give you some encouragement. I love you Mom with all my heart and your attitude has been so good and you are a trooper. Don't let this get you down. You are going to beat this . That is one good thing that you have on your side. Your age for one because if you would have been diagnosed 5 years from now this wouldn't be an option. God is giving you this chance an with all our prayers and faith it WILL BE!


    The longer I live, the more I realize the impact of attitude on life. Attitude, to me, is more important than facts. It is more important than the past, than education, than money, than what other people think or say or do. It is more important than appearance, giftedness or skill. It will make or break a company ... a church ... a home. The remarkable thing is we have a choice every day regarding the Attitude we will embrace for that day. We cannot change our past. We cannot change the fact that people will act in a certain way.
    We cannot change the inevitable.
    The only thing we can do is play on the one string we have, and that is our Attitude. I am convinced that life is 10% what happens to me and 90% how I react to it. And so it is with you ...
    We are in charge of our Attitudes.
    - Charles R. Swindoll

     

  • At 12:18 AM, Anonymous Anonymous said…

    Cindy,
    I am so sorry for all the ups and downs and uncertainty you have had to endure on your journey. Once again you are called on to focus on the positive things and stay strong. I can sense how close you are to Libby and how fortunate you are that she is a match for your transplant. You will forever have a special bond.
    How comforting it will be for you to soon be in your familiar surroundings with those who love you. Our prayers for you will continue so your strength will return quickly.
    Love,
    Daleen

    "Everything will be OK in the end.
    If it's not OK.. it's not the end."

     

  • At 12:29 AM, Anonymous Anonymous said…

    CINDY' WHEN RENEE BROUGHT OUT THE UPDATE FROM YOUR BLOG TO THE NURES STATION WE WERE ALL DEVASTED FOR YOU KYLE AND AND ALL OF YOUR FAMILY.AS ALOT OF YOUR FRIENDS AND FAMILY HAVE SAID GOD DOSE NOT GIVE US MORE THEN WE CAN HANDLE. YOU CAN DO THIS! YOU ARE A STRONG AND POSITIVE PERSON. WHILE YOU ARE AT HOME REST AND GET BACK YOUR STRENGHT AND THEN YOU KYLE YOUR FAMILY AND FRIENDS WILL ALL PUT ON THE BOXING GLOVES AND WE WILL ALL GIVE THOSE CELLS WHAT FOR!! AS I WAS DRIVING HOME TONIGHT I WAS THINKING AND PRAYING ABOUT YOU AND THIS SOUNG CAME ON THAT I HAD NOT HEAR IN AGES THE SONG WAS I WILL SURVIVE!!!AND YES YOU WILL!! THE PRAYERS WILL KEEP COMING YOUR WAY AND YOU WILL SURVIVE!! YES YOU CAN!! LOVE YOU DIANA IF YOU WANT TO TALK YOU HAVE MY NUMBER NOW AND YOU CAN CALL ANY TIME.

     

  • At 6:23 AM, Blogger Saroth said…

    Goodmorning Cindy,

    You are an amazing woman, that is stronger than most. So, we are now in overtime and what is better than an overtime WIN. So as you take another step to get well, put on the boxing gloves once again. Breathe in the fullness of the love you have from your family and friends. Remember that all of us
    (family, friends and fellow bloggers) abundantly support you, Kyle, your children and grandchilderen and lets us keep supplying you with more prayers and positive thoughts to win this overtime fight.

    "Be strong and courageous; do not be frightenined or dismayed, for the Lord your God is with you wherever you go".
    Joshua 1:9


    We love you so much and think of you constantly. Believe it and you will achieve it. Stay strong out-law.

    Love, hugs and prayers,
    Jude, Shelly, Bryce and Shai

     

  • At 8:02 AM, Anonymous Anonymous said…

    Just want you to know that I am still in your corner praying for you.Keep up the fight.I know Kyle is your ROCK, But you have been fighting like ROCKY. Yo, Adrian!Enjoy your rest when you get home, you deserve it. Love, Sharon

     

  • At 9:26 AM, Anonymous Anonymous said…

    ABB, NO WORDS CAN EXPLAIN WHAT YOU HAVE ENDURED. JUST KNOW WE ARE IN THIS FIGHT TOGETHER. OUR FAITH IS BEING TESTED BUT IT WILL NOT BE SHAKEN, WE WILL FIGHT WITH YOU AND OUR PRAYERS WILL CONTINUE BECAUSE WE BELIEVE, THROUGH HIM ALL GOOD THINGS COME. GET YOUR REST. KEEP UP YOUR GREAT ATTITUDE. WE LOVE YOU , JULIE & ED

     

  • At 2:44 PM, Anonymous Anonymous said…

    Hi Cindy,

    We have been hearing about you, through Sharon, and hearing your name in Church. We were in Toledo, a couple of weeks ago, and talked with one of your co-workers. Her name is Vicki, and is a sister-in-law of Mitch's. I don't know how the subject came up about you, but she knew exactly who I was talking about. Glad you are feeling like you belong to the human race again, and hope you continue on the recovery path. You are in our thoughts and prayers. Hang in there and stay positive.

    Ed and Lucy Naufel

     

  • At 5:54 AM, Anonymous Anonymous said…

    Hey what a great site keep up the work its excellent.
    »

     

  • At 12:29 PM, Anonymous Anonymous said…

    Very pretty site! Keep working. thnx!
    »

     

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